Living With a Spinal Cord Injury

Other Places To Get Help

Organizations

American Occupational Therapy Association
4720 Montgomery Lane, P.O. Box 31220
Bethesda, MD  20824-1220
Phone: (301) 652-2682
Fax: (301) 652-7711
TDD: 1-800-377-8555
Web Address: http://www.aota.org
 

The American Occupational Therapy Association (AOTA) is the nationally recognized professional association of approximately 35,000 occupational therapists, occupational therapy assistants, and students of occupational therapy. AOTA's mission is to advance the quality, availability, use, and support of occupational therapy through standard-setting, advocacy, education, and research on behalf of its members and the public.


National Spinal Cord Injury Association
6701 Democracy Blvd.
Suite 300-9
Bethesda, MD  20817
Phone: 1-800-962-9629 (toll free)
(301) 214-4006 (voicemail)
Fax: (301) 881-9817
E-mail: info@spinalcord.org
Web Address: http://www.spinalcord.org
 

The National Spinal Cord Injury Association provides information and referral to individuals with new and existing spinal cord injuries and to their families. They sponsor chapters nationwide, and their Web site provides an extensive number of links to information and education on spinal cord injuries.


Rehabilitation Resource and Training Center on Spinal Cord Injury
National Rehabilitation Hospital
102 Irving Street NW
Washington, DC  20010
Phone: (202) 877-1038
Fax: (202) 726-7521
TDD: (202) 877-1450
Web Address: www.sci-health.org/index.php
 

The Rehabilitation Resource and Training Center (RRTC) on Spinal Cord Injury (SCI) is a collaborative effort by national leaders in SCI-related research, clinical expertise, support and education organizations, independent living centers, and consumers with SCI. The focus of this RRTC is on developing knowledge about and prevention of secondary conditions in SCI. The primary conditions studied will be cardiovascular disease and osteoporosis, although a wide range of other secondary conditions, such as respiratory problems, urinary tract infection, depression, and pain, as well as quality of life, will be examined. The network will also study how exercise and physical activity can help prevent certain secondary conditions after SCI. The Web site includes links to consumer information and publications on a wide range of subjects related to SCI.


Spinal Cord Injury Information Network
Phone: (205) 934-3283
Fax: (205) 975-4691
TDD: (205) 934-4642
E-mail: sciweb@uab.edu
Web Address: www.spinalcord.uab.edu/show.asp?durki=19679
 

This Web site offers educational materials and information on services of the University of Alabama Spinal Cord Injury Model System (UAB-SCIMS). It includes links to national organizations, government agencies, commercial products, and educational resources related to spinal cord injury.


U.S. Department of Justice: Americans with Disabilities Act
950 Pennsylvania Avenue NW
Civil Rights Division Disability Rights Section—NYA
Washington, DC  20530
Phone: 1-800-514-0301
Fax: (202) 307-1198
TDD: 1-800-514-0383
Web Address: www.ada.gov
 

This Department of Justice Web site has links to information about the legal rights of Americans who are in some way disabled. Legal rights to housing, jobs, mobility, education, technology use, health care, and recreation are described. And the Web site also has information about the latest legal developments that affect people with disabilities.



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Author: Shannon Erstad, MBA/MPH Last Updated: February 18, 2009
Medical Review: William M. Green, MD - Emergency Medicine
Nancy Greenwald, MD - Physical Medicine and Rehabilitation

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Topic Contents
 Overview
 FAQs
 What Happens
 Rehabilitation
 Bladder Care
 Bowel Care
 Pressure Sores
 Lung Care
 Intimacy and Fertility
 Living With a Spinal Cord Injury
 When to Call a Doctor
 Concerns of the Caregiver
 Search for a Cure
Arrow PointerOther Places To Get Help
 Related Information
 References
 Credits