Breast and Ovarian Cancer (BRCA) Genetic TestWhy would I not be tested?
You may have several
reasons not to have the test:
- You may face difficult emotions. You may be
afraid and anxious if you test positive. You may feel guilty if you test
negative and someone in your family tests positive.
- You are
concerned about how the results might affect your relationships. You have to
decide if you would tell a family member—a sister or daughter, for example—who
then has to decide if he or she wants to have the test.
- Your insurance does not cover the testing, or covers
only some of it. Genetic testing can be very expensive (several hundred to
several thousand dollars). But most insurance companies will cover
the cost of genetic testing for those who meet the conditions for
testing.
- You are concerned about how the information might
affect your life, disability, or long-term care insurance. The discovery of a
genetic disease that is not causing symptoms now (such as breast cancer) should not affect your future ability to gain employment
or health insurance coverage. A law in the United States, called the Genetic
Information Nondiscrimination Act of 2008 (GINA), protects people who have DNA
differences that may affect their health. But this law does not cover life
insurance, disability insurance, or long-term care
insurance.
- You would not take preventive steps—such as
regular exams and tests, taking medicine, or having your breasts or ovaries
removed—no matter what the test results are.
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