Tay-Sachs DiseaseOther Places To Get Help
Online Resource| Family Village: A Global Community of Disability-Related Resources | | Family Village, Waisman Center, University of
Wisconsin-Madison | | Web Address: | www.familyvillage.wisc.edu | | | This Web site has information about disabilities that
affect children and their families. It also has links to many online resources.
There is information about Tay-Sachs disease, Down syndrome, cystic fibrosis,
group B strep, and many other conditions. |
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Organizations| Center for Jewish Genetic Diseases, Mount Sinai School
of Medicine | | Box 1497 | | One Gustave L. Levy Place | | New York, NY 10029 | | Phone: | (212) 659-6774 | | Web Address: | www.mssm.edu/jewish_genetics | | | The Center for Jewish Genetic Diseases studies diseases
that affect Ashkenazi Jews. The Center's mission is to improve the diagnosis,
treatment, and counseling of patients and their families suffering from Jewish
genetic diseases and to conduct research to combat these diseases. |
| | Chicago Center for Jewish Genetic
Disorders | | Ben Gurion Way, 30 South Wells Street | | Chicago, IL 60606 | | United States | | Phone: | 312-357-4718 | | E-mail: | jewishgeneticsctr@juf.org | | Web Address: | www.jewishgeneticscenter.org | | | This organization provides public and professional
education about Jewish genetic disorders. It also promotes screening and
prevention programs, information, and referrals. |
| | Genetic Alliance | | 4301 Connecticut Avenue NW | |
Suite 404 | | Washington, DC 20008-2369 | | Phone: | 1-800-336-GENE (1-800-336-4363) (202) 966-5557 | | Fax: | (202) 966-8553 | | E-mail: | info@geneticalliance.org | | Web Address: | www.geneticalliance.org | | | The Genetic Alliance is an international organization
made up of millions of people with genetic conditions and more than 600
advocacy, research, and health care organizations that represent their
interests. The Alliance builds partnerships to promote healthy lives for all
those living with genetic conditions. The Genetic Alliance
promotes healthy lives by working to speed the translation of genetic advances
into quality and affordable health care, public awareness, and
consumer-centered public policies. |
| | March of Dimes | | 1275 Mamaroneck Avenue | | White Plains, NY 10605 | | Phone: | (914) 997-4488 | | Web Address: | www.marchofdimes.com | | | The March of Dimes tries to improve the health of babies by
preventing birth defects, premature birth, and early death. March of Dimes
supports research, community services, education, and advocacy to save babies'
lives. The organization's Web site has information on premature birth, birth
defects, birth defects testing, pregnancy, and prenatal care. You can sign up
to get a free newsletter and also explore Understanding Your Newborn: An
Interactive Program for New Parents. |
| | National Library of Medicine: Genetics Home
Reference | | 8600 Rockville Pike | | Bethesda, MD 20894 | | Phone: | 1-888-FIND-NLM (1-888-346-3656) (301) 594-5983 | | Fax: | (301) 402-1384 | | TDD: | 1-800-735-2258 | | E-mail: | custserv@nlm.nih.gov | | Web Address: | http://ghr.nlm.nih.gov | | | This Web site has consumer-friendly information about
how human health is affected by genetics. There is information about genetic
conditions, counseling, testing, and research as well as definitions of
mutations, inheritance, and more. |
| | National Tay-Sachs and Allied Diseases Association, Inc.
(NTSAD) | | 2001 Beacon Street | |
Suite 204 | | Boston, MA 02135 | | Phone: | 1-800-906-8723 | | Fax: | (617) 277-0134 | | E-mail: | info@ntsad.org | | Web Address: | www.ntsad.org | | | NTSAD is a nonprofit, volunteer health agency devoted to
the treatment and prevention of Tay-Sachs and other genetic conditions. Its Web
site has information about genetic diseases, carrier testing, genetic
counseling, and more. NTSAD has a support group for families and individuals
affected by genetic diseases. |
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