Sjögren's SyndromeOther Places To Get HelpOrganizations| National Institute of Neurological Disorders and Stroke
(NINDS) | |
P.O. Box 5801 | | Bethesda, MD 20824 | | Phone: | 1-800-352-9424 (301) 496-5751 | | TDD: | (301) 468-5981 | | Web Address: | www.ninds.nih.gov | | | The National Institute of Neurological Disorders and Stroke
(NINDS), a part of the National Institutes of Health, is the leading U.S.
federal government agency supporting research on brain and nervous system
disorders. It also provides the public with educational materials and
information about these disorders. |
| | American Academy of Ophthalmology
(AAO) | |
P.O. Box 7424 | | San Francisco, CA 94120-7424 | | Phone: | (415) 561-8500 | | Fax: | (415) 561-8533 | | Web Address: | www.aao.org | | | The American Academy of Ophthalmology (AAO) is an association of
medical eye doctors. It provides general information and brochures on eye
conditions and diseases and low-vision resources and services. The AAO is not
able to answer questions about specific medical problems or conditions. |
| | American Autoimmune Related Diseases Association
(AARDA) | | 22100 Gratiot Avenue | | East Detroit, MI 48021 | | Phone: | (586) 776-3900 | | E-mail: | aarda@aol.com | | Web Address: | http://www.aarda.org
| | | This national nonprofit health agency is dedicated to curing
autoimmune diseases and relieving the suffering and the economic and social
impact of autoimmune diseases. AARDA brings professionals together in the areas
of education, research, and patient services, and sponsors physicians'
conferences, research, legislative advocacy, and a national awareness
campaign. |
| | American College of Rheumatology | | 1800 Century Place | |
Suite 250 | | Atlanta, GA 30345 | | Phone: | (404) 633-3777 | | Fax: | (404) 633-1870 | | Web Address: | www.rheumatology.org | | | The American College of Rheumatology (ACR) and the Association of
Rheumatology Health Professionals (ARHP, a division of ACR) are professional
organizations of rheumatologists and associated health professionals who are
dedicated to healing, preventing disability from, and curing the more than 100
types of arthritis and related disabling and sometimes fatal disorders of the
joints, muscles, and bones. Members of the ACR are physicians; members of the
ARHP include research scientists, nurses, physical and occupational therapists,
psychologists, and social workers. Both the ACR and the ARHP provide
professional education for their members. The ACR Web site offers patient information fact sheets about care
professionals and rheumatic diseases. |
| | National Eye Institute, National Institutes of
Health | | Information Office | | 31 Center Drive MSC 2510 | | Bethesda, MD 20892-2510 | | Phone: | (301) 496-5248 | | E-mail: | 2020@nei.nih.gov | | Web Address: | www.nei.nih.gov | | | As part of the U.S. National Institutes of Health, the National Eye
Institute provides information on eye diseases and vision research.
Publications are available to the public at no charge. The Web site includes
links to various information resources. |
| | Sjögren's Syndrome Clinic | | National Institute of Dental and Craniofacial Research, National Institutes of Health | | Bethesda, MD 20892-2190 | | Phone: | (301) 402-7364 | | Fax: | (301) 480-4098 | | E-mail: | nidcrinfo@mail.nih.gov | | Web Address: | http://www.nidcr.nih.gov/Research/Intramural/GeneTherapy/SjogrensSyndrome/SjogrensSyndromeClinic.htm | | | This clinic conducts basic and clinical research on salivary
function and Sjögren’s syndrome and is located in the Gene Therapy and
Therapeutics Branch (GTTB), National Institute of Dental and Craniofacial
Research (NIDCR), National Institutes of Health (NIH) at the Warren Grant
Magnusson Clinical Center in Bethesda, Maryland. |
| | Sjögren's Syndrome Foundation | | 8120 Woodmont Avenue | |
Suite 530 | | Bethesda, MD 20814 | | Phone: | 1-800-475-6473 | | Fax: | (301) 718-0322 | | Web Address: | http://www.sjogrens.com
| | | This nonprofit foundation educates both health professionals and
people with Sjögren's syndrome about the disease, and produces and distributes
educational materials, including the Moisture Seekers
newsletter, handbooks, videos, and medical articles. A network of chapters,
support groups, and contacts organizes meetings, participates in health fairs,
increases awareness in their community, and promotes local media campaigns. The
foundation sponsors educational programs, symposia, and workshops; provides
physician and dentist referrals; and advocates for research and treatment
centers. |
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