Home Treatment
Handling the challenges of
caring for a child who has cystic fibrosis can be difficult. It is
normal to feel guilty and overwhelmed by how hard it is and how much time it
takes to care for a child who has a long-term, life-shortening illness.
Counseling or support groups can help you deal with your feelings, as can
educating yourself about the disease. Taking good care of yourself, physically
and emotionally, will help you give your child with
cystic fibrosis the best care possible.
Home treatment is a very important part of treating cystic fibrosis. Home
treatment can make a person with cystic fibrosis feel better and live longer.
Even though it can be challenging to follow a home treatment plan every day,
there are many benefits of home treatment. If a treatment is skipped, the child
may not feel any worse right away, but he or she has an increased chance of
having more serious problems later. Specifically, home treatment can
help:
- Clear
mucus from the lungs.
- Prevent
infection.
- Improve nutrition.
- Increase the child's energy level.
Airway clearance techniques
Health professionals, parents, siblings, or other caregivers can perform
these techniques on a child who has cystic fibrosis. Teenagers and adults with
cystic fibrosis can learn to do these techniques themselves.
- Postural drainage and chest percussion.
Drainage and percussion help unstick mucus from the lungs so that it can be
coughed out. For specific instructions, see:
Cystic fibrosis: Helping your child cough up
mucus.
- Deep breathing exercises. These breathing
techniques help you exhale more completely by strengthening the stomach muscles
used for breathing. Your health professional or
respiratory therapist can teach you or your child how
to do these exercises.
- Directed cough. Directed coughing is a
specific pattern of breathing and coughing that helps clear mucus from the
lungs. Your health professional or respiratory therapist can teach you or your
child how to do these exercises.
- Alternate methods of airway
clearance that use machines or other devices to help get rid of
mucus.
Improving nutrition and
energy