Self Help Clearinghouse

Metabolic Disorder Helpline

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

World Life Foundation

Provides support, research, information and referrals for persons interested in rare metabolic disorders. Provides air transportation for ambulatory patients who need non-emergency treatment.
Write:
World Life Foundation
P.O. Box 571
Bedford, TX 76095-0571
Voice: 1-800-289-5433
Verified: 11/11/2007

National Institute of Diabetes and Digestive and Kidney Diseases

Provides referrals and literature on a broad range of subjects concerning diabetes, digestive disorders, kidney disease, hematologic diseases, urologic disorders, metabolic and endocrine disorders.
Write:
Digestive and Kidney Diseases
3 Information Way
Bethesda, MD 20892
Voice: 1-800-891-5390 (kidney); 1-800-860-8747 (diabetes); 1-800-891-5359 (digestive diseases)
Website: http://www.niddk.nih.gov
E-mail: nkudic@info.niddk.nih.gov
Verified: 10/1/2007

NIH Osteoporosis and Related Bone Diseases Resource Center

Provides written information to patients, professionals and the public. Resources and information on metabolic bone diseases such as osteoporosis, Paget's disease, osteogenesis imperfecta and primary hyperparathyroidism. Annotated bibliography on current research available to professionals.
Write:
NIH Osteoporosis Res. / MSC 2350
31 Center Dr., Bldg. 31, Rm. 4C02
Bethesda, MD 20892-2350
Voice: 1-800-624-2663 or 202-223-0344
TDD: 202-466-4315
Website: http://www.osteo.org
E-mail: niamsboneinfo@mail.nih.gov
Verified: 11/1/2007

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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