Self Help Clearinghouse
Health Helpline
This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. National Women's Health Information Center
Provides information and referrals for all women's health questions, including questions on breast feeding.
Write:
Nat'l Women's Health Info. Center
8270 Willow Oaks Corporate Dr.
Fairfax, VA 22031
Voice: 1-800-994-9662
TDD: 1-888-220-5446
Website: http://www.womenshealth.gov
Verified: 10/1/2007Center for Human Genetics
Provides information on disorders currently under study by the Center for Human Genetics. These include: Alzheimer's, ALS, asthma, autism, Bethlehem myopathy, Chiari malformation, CMT, cardiovascular, facioscapulohumeral muscular dystrophies, focal segmental glomerulosclerosis, spastic paraparesis, glaucoma, benign intraepithelial dyskeratosis, hypophosphatemic rickets, limb-girdle muscular dystrophy, MS, neural tube defects, osteoarthritis, Parkinson's, and tuberous sclerosis. See website for complete list.
Write:
Duke University
P.O. Box 3445
Durham, NC 27710
Voice: 1-800-283-4316
Website: http://www.chg.duhs.duke.edu
Verified: 10/1/2007National Health Information Center
Helps the public and health professionals locate health information through identification of health, information resources, information and referral systems. Distributes publications and directories on good health and disease prevention topics.
Write:
National Health Information Ctr.
P.O. Box 1133
Washington, DC 20013-1133
Voice: 1-800-336-4797
Fax: 301-984-4256
Website: http://www.healthfinder.gov
E-mail: info@nhic.org
Verified: 10/1/2007Minority Health Resource Center
Federally-funded library service that provides information and referral to sources on health problems for minorities.
Write:
Minority Health Resource Center
P.O. Box 37337
Washington, DC 20013-7337
Voice: 1-800-444-6472
TDD: 301-251-1432
Website: http://www.omhrc.gov
Verified: 10/1/2007National Library of Medicine
Provides information and referrals to help callers research health questions.
Write:
National Library of Medicine
8600 Rockville Pike
Bethesda, MD 20894
Voice: 1-888-346-3656
Website: http://www.nlm.nih.gov
E-mail: custserv@nlm.nih.gov
Verified: 10/1/2007NORD (National Organization for Rare Disorders)
Information and networking for persons with rare disorders. Literature.
Write:
NORD (Nat'l Organization for Rare Disorders)
P.O. Box 1968
Danbury, CT 06813-1968
Voice: 1-800-999-6673 or 203-744-0100
TDD: 203-797-9590
Website: http://www.rarediseases.org
E-mail: orphan@rarediseases.org
Verified: 1/18/2007National Reference Center for Bioethics Literature
Provides information via e-mail, websites or mail on bioethical topics. Will do limited searches on special topics.
Write:
Georgetown University
Box 571212
Washington, DC 20057-1212
Voice: 1-800-633-3849
Website: http://bioethic.georgetown.edu
E-mail: bioethics@georgetown.edu
Verified: 10/1/2007Visiting Nurse Association of America
Referrals to local Visiting Nurse Associations.
Write:
Visiting Nurse Assoc. of America
99 Summer St., Suite 1700
Boston, MA 02110
Voice: 1-888-866-8773 or 617-737-3200
Website: http://www.vnaa.org
E-mail: vnaa@vnaa.org
Verified: 8/24/2007American Running Association
Information on aerobic sports. Referrals to sports medicine clinics, podiatrists and orthopedists.
Write:
American Running Association
4405 East-West Highway, Suite 405
Bethesda, MD 20814
Voice: 1-800-776-2732 or 301-913-9517
Website: http://www.americanrunning.org/
E-mail: run@americanrunning.org
Verified: 8/24/2007National Immunizations Information Hotline
Information and referrals on immunizations for infants and adults. Referrals to health care professionals.
P.O. Box 13827
R T P, NC 27709
Voice: 1-800-232-4636
TDD: 1-888-232-6348
Website: http://www.cdc.gov/nip
E-mail: nipinfo@cdc.gov
Verified: 5/3/2007National Institute for Occupational Safety and Health
Information on all aspects of occupational health and safety.
Write:
Nat'l Inst for Occupational Safety
1600 Clifton Rd.
Atlanta, GA 30333
Voice: 1-800-356-4674 or 513-533-8326
Website: http://www.cdc.gov/niosh
E-mail: eidtechinfo@cdc.gov (for publications)
Verified: 5/3/2007FDA Office on Orphan Product Development
Provides referrals for persons who need a rare orphan drug.
Write:
Office on Orphan Prod. Dev.
5600 Fishers Lane Rm. 6A55
Rockville, MD 20857
Voice: 1-800-300-7469
Website: http://www.fda.gov/orphan
Verified: 8/24/2007American Health Assistance Foundation
Provides educational information and funds research for Alzheimer's disease, glaucoma, and macular degeneration.
Write:
American Health Assistance Fnd.
22512 Gateway Center Dr.
Clarksburg, MD 20871
Voice: 1-800-437-2423
Website: http://www.ahaf.org
Verified: 6/12/2007American Board of Medical Specialties
Will tell you if your physician is board certified.
Write:
American Board of Med. Specialties
1007 Church St., Suite 404
Evanstown, IL 60201-5913
Voice: 1-866-275-2267 or 847-491-9091
Website: http://www.abms.org
Verified: 10/1/2007National Women's Health Resource Center
Provides information on women's health issues. Dedicated to helping women make informed decisions about their health.
Write:
Nat'l Women's Health Resource Center
157 Broad St., Suite 315
Red Bank, NJ 07701
Voice: 1-877-986-9472
Website: http://www.healthywomen.org
E-mail: info@healthywomen.org
Verified: 10/1/2007CDC Traveler's Health Helpline
Provides information for persons traveling overseas. Includes vaccinations, diseases, safe food and water, traveling with children, persons with special needs, etc.
Voice: 1-877-394-8747
Website: http://www.cdc.gov/travel/
Verified: 4/25/2007March of Dimes
Dedicated to decreasing the incidence of birth defects, infant mortality, low birth weight and lack of prenatal care. Provides information, referrals and literature.
Write:
March of Dimes
1275 Mamoroneck Ave.
White Plains, NY 10605
Voice: 1-888-663-4637
Website: http://www.marchofdimes.com
Verified: 10/1/2007'Su Familia' Health Helpline
Provides confidential health information to Hispanic patients and their families. Provides bilingual fact sheets for a wide variety of health topics. Sponsored by the National Alliance for Hispanic Health.
Write:
Nat'l Alliance for Hispanic Health
1501 16th St. NW
Washington, DC 20036
Voice: 1-866-783-2645
Website: http://www.hispanichealth.org
E-mail: alliance@hispanichealth.org
Verified: 10/1/2007Medicare + Choice Helpline Assistant
Provides information on Medicare, Medigap and health plan options. Publications and audiotapes. Sponsored by federal government.
Voice: 1-800-633-4227
Website: http://www.medicare.gov
Verified: 8/24/2007American Dietetic Association
Information on diet. Referrals to dietitians. Brochures sometimes available. Sponsored by National Center for Nutrition and Diatetics.
Write:
American Dietetic Association
120 S. Riverside Plaza, Suite 2000
Chicago, IL 60606-6995
Voice: 1-800-366-1600
Website: http://www.eatright.org
Verified: 11/1/2007UAB Eat Right
Information on nutrition and related topics (weight loss and cholesterol). Sponsored by Nutrition Information Services.
Write:
Univ. of Alabama / LRC Bldg.
1675 University Blvd, Rm 358
Birmingham, AL 35294
Voice: 1-800-231-3438
Verified: 6/12/2007National Center on Complementary and Alternative Medicine
Provides information on clinical trials and current research projects conducted on alternative medicine.
Write:
NCCAM Clearinghouse
P.O.Box 7923
Gaithersburg, MD 20898-7923
Voice: 1-888-644-6226 or 301-519-3153
TDD: 1-866-464-3615
Website: http://nccam.nih.gov
E-mail: info@nccam.nih.gov
Verified: 10/1/2007DES Action USA
Information for women who were prescribed DES during pregnancy and their children. Referrals and education for the public and health workers. Quarterly newsletter.
Write:
DES Action U.S.A.
158 S. Stanwood Rd.
Columbus, OH 43209
Voice: 1-800-337-9288
Verified: 4/25/2007Centers for Disease Control and Prevention
Provides information on health related topics, vaccinations, traveler's health, grants, genetics, hoaxes, rumors, and emergency responses. Information is available via the phone or online.
Write:
CDC
1600 Clifton Rd., NE
Atlanta, GA 30333
Voice: 1-800-232-4636
Website: http://www.cdc.gov
E-mail: inquiry@cdc.gov
Verified: 5/3/2007The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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