Self Help Clearinghouse

Kidney Disease

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American Association of Kidney Patients

National. 14 chapters. Founded 1969. Patient organization dedicated to helping renal patients and their families deal with the physical, emotional and social impact of kidney disease. Aim is to inform and inspire patients and their families to better understand their condition, adjust more readily to their circumstances and assume more normal, productive lives. Provides education and support for kidney patients, including those with reduced kidney function, on dialysis and transplant patients. Offers various educational materials, a bimonthly and quarterly magazine, two electronic newsletters and an annual convention. Chapter development guidelines available.
Write:
American Assn. of Kidney Patients
3505 E. Frontage Rd., Suite 315
Tampa, FL 33607
Voice: 1-800-749-2257 or 813-636-8100 (day)
Fax: 813-636-8122
Website: http://www.aakp.org
E-mail: info@aakp.org
Verified: 10/29/2007

PKD Foundation for Research in Polycystic Kidney Disease

International. 65 volunteer Friends chapters. Founded 1982. Funds research and provides emotional support and education for persons with polycystic kidney disease and their families. Promotes public awareness. Holds medical seminars and fund-raisers. Conferences, phone support, newsletter and assistance in starting new groups.
Write:
PKR Foundation
9221 Ward Parkway, Suite 400
Kansas City, MO 64114-3367
Voice: 1-800-753-2873 or 816-931-2600
Fax: 816-931-8655
Website: http://www.pkdcure.org
E-mail: daves@pkdcure.org
Verified: 10/03/2007

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

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