Self Help Clearinghouse

X-Linked Hyophosphatemia (Vitimin D Res Rickets)

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XLH Network

Online. Founded 1996. Volunteer organization offering support and information for individuals and families affected by X-linked hypophosphatemia (aka X-linked hypophosphatemic rickets, familial hypophosphatemic rickets or vitamin D resistant rickets). Also open to those affected by similar disorders including autosomal dominant hypophosphatemic rickets and tumor-induced osteomalacia. Open to interested professionals dedicated to understanding in terms of support, research and developing new treatments. Exchanges and disseminates information. Offers an online brochure and members listserv.
Write:
XLH Network
4562 Stoneledge Lane
c/o Joan Reed
Manlius, NY 13104
Website: http://www.xlhnetwork.org
E-mail: joan.reed@xlhnetwork.org
Verified: 4/30/2007

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Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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