Self Help Clearinghouse

Scleroderma

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Juvenile Scleroderma Network

International. Founded 1999. Support network connecting children with juvenile scleroderma with each other to help them feel less isolated and less frightened. Provides comfort and reassurance to families. Membership $20/yr. Newsletter, information and referrals, literature, advocacy, telephone support network and pen pal program. Moderated message board and e-mail discussion group. Provides assistance and materials on starting new groups.
Write:
Juvenile Scleroderma Network
1204 W. 13th St.
San Pedro, CA 90731
Voice: 310-519-9511
Website: http://www.jsdn.org
Verified: 10/2/2008

Scleroderma Foundation, Inc.

National. 22 chapters, 170 affiliated groups. Founded 1970. Dedicated to providing emotional support to people with scleroderma and their families. Provides scleroderma education and public awareness and funds research. Referrals to local support groups and physicians. Advocacy and conferences. Online chatrooms. Dues $25.
Write:
Scleroderma Foundation
300 Rosewood Dr., Suite 105
Danvers, MA 01923
Voice: 1-800-722-4673
Fax: 978-463-5809
Website: http://www.scleroderma.org
E-mail: sfinfo@scleroderma.org
Verified: 9/29/2008

Scleroderma Research Foundation

National. Founded 1987. Mission is to find a cure for scleroderma by funding and facilitating the most promising research. Provides scleroderma information online and via 'Insights' scleroderma newsletter.
Write:
Scleroderma Research Foundation
220 Montgomery St., Suite 1411
San Francisco, CA 94104
Voice: 1-800-441-2873
Fax: 415-834-9177
Website: http://www.sclerodermaresearch.org
E-mail: info@sclerodermaresearch.org
Verified: 9/29/2008

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

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