Self Help Clearinghouse

Reflex Anoxic Seizure Disorder

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STARS-US (Syncope Trust And Reflex Anoxic Seizures)

National. Founded 2007. Network of parents and sufferers of syncope and reflex anoxic seizure (characterized by temporary heart stoppage and a seizure-like response to any unexpected stimuli), also known as Stephenson's seizure, white breath holding or pallid infantile syncope. Newsletter, networking, literature, phone support, conferences, information and referrals. Online e-bulletin and moderated message board. Support system and education for sufferers, their families, medical community and general public. Offers assistance in starting local chapters. Dues: $25/yr.
Write:
STARS-US
P.O. Box 5507
Hilton Head Island, SC 29938
Voice: 843-785-4101
Website: http://www.stars-us.org
E-mail: rsmith@stars-us.org
Verified: 9/29/2008

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