Self Help Clearinghouse

Pseudoxanthoma Elasticum

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National Association for Pseudoxanthoma Elasticum

National network. Founded 1988. Support, education, research and advocacy for persons with PXE, their families, interested others and professionals. Phone support, newsletter, information and referrals. Donations appreciated and tax deductible.
Write:
National Association for Pseudoxanthoma Elasticum
8760 Manchester Rd.
Saint Louis, MO 63144-2724
Voice: 314-962-0100 (voice/fax)
Website: http://www.pxenape.org
E-mail: napestlouis@sbcglobal.net
Verified: 4/30/2007

PXE International, Inc.

International. 41 affiliated groups. Founded 1995. Initiates, funds and manages research, supports patients and educates clinicians. Offers support groups, listservs, literature, semi-annual newsletter, phone and mail contacts. Offers assistance in starting similar groups.
Write:
PXE International, Inc.
4304 Connecticut Ave. NW, Suite 404
Washington, DC 20008-2369
Voice: 202-362-9599
Fax: 202-966-8553
Website: http://www.pxe.org
E-mail: info@pxe.org
Verified: 11/2/2007

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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