Self Help Clearinghouse

Mitochondrial Disorders

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United Mitochondrial Disease Foundation (UMDF)

National network. 13 chapters. 17 affiliated groups. Founded 1995. Promotes research and education for the diagnosis, treatment and cure of mitochondrial disorders and provides support to affected individuals and families. Chapter and support groups, networking for families affected by mitochondrial disease, a genetic degenerative disease. Quarterly newsletter, information and referrals, library of medical publications, patient registry, phone help and annual symposium. Awards research grants.
Write:
UMDF
8085 Saltsburg Rd.
Pittsburgh, PA 15239
Voice: 412-793-8077
Fax: 412-793-6477
Website: http://www.umdf.org
E-mail: info@umdf.org
Verified: 10/11/2007


The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.


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 United Mitochondrial Disease Foundation (UMDF)