Self Help Clearinghouse

Marfan Syndrome

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National Marfan Foundation

National network. Founded 1981. Network includes chapters, support groups and volunteer telphone support contacts. Provides information on Marfan syndrome and related connective tissue disorders to patients, families, medical professionals and the public. Provides a means for patients and relatives to share experiences and support one another. Supports and fosters research. Conference, newsletter and publications.
Write:
National Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
Voice: 1-800-862-7326 ext. 10 or 516-883-8712
Fax: 516-883-8040
Website: http://www.marfan.org
E-mail: staff@marfan.org
Verified: 10/12/2007

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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