Self Help Clearinghouse

Mannosidosis, Alpha

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Int'l Advocate for Glycoprotein Storage Disease (ISMRD)

International network. Founded 1999. Provides emotional support for families affected by any glycoprotein storage disease. Offers educational resources for medical community. Promotes research to develop treatments. Phone support, literature, pen pals, newsletter, advocacy, online message boards, chat rooms, e-mail discussions, information and referrals.
Write:
ISMRD
2980 East Pillar Dr.
Whitemore Lake, MI 48189
Voice: 734-449-9038
Website: http://www.ismrd.org
Verified: 11/11/2007

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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