National network. Founded 2000. Mutual support and information for
persons with Kennedy's disease (aka spinal and bulbar muscular
atrophy), their families and caregivers. Opportunity to share
personal experiences to help alleviate the feeling of aloneness and
to engender hope and a positive attitude. Sharing of information
regarding diagnosis, treatment and current research. Online chat
room every two weeks.
Write:
Kennedy's Disease Association, Inc.
P.O. Box 1105
Coarsegold, CA 93614-1105
Voice: 559-658-5950
Website: http://www.kennedysdisease.org
E-mail: info@kennedydisease.org
Verified: 4/25/2007
The above information was "verified" as correct on the date at the end of each entry. Since American
Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for
these organizations can change, it is not possible to keep every entry in American Self-Help Group
Clearinghouse database completely current and accurate. Please check with the organizations listed
for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group
Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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