Self Help Clearinghouse

Immune Deficiency

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Immune Deficiency Foundation

National. Founded 1980. Provides support and education for families affected by primary immune deficiency diseases. Newsletter, handbook, videotape and educational materials for public and medical professionals. Networks individuals and family members affected by immune deficiency. Scholarships and fellowship program. Group development guidelines.
Write:
Immune Deficiency Foundation
40 W. Chesapeake Ave., Suite 308
Towson, MD 21204
Voice: 1-800-296-4433
Website: http://www.primaryimmune.org
E-mail: idf@primaryimmune.org
Verified: 11/3/2007

SCID Mailing Group

Online network. Founded 1997. Online self-help group for families afflicted with severe combined immune deficiency or who have lost a child to this very rare genetic disorder which results in severe infections. Provides opportunity for families to share information and resources with one another.
Website: http://www.scid.net
E-mail: SCIDemail@scid.net
Verified: 5/4/2007

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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