Hermansky-Pudlak Syndrome

Self Help Clearinghouse

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Hermansky-Pudlak Syndrome Network
Int'l network. 2 affiliated groups. Founded 1992. Mutual support and education for families affected by Hermansky-Pudlak Syndrome and Chediak Higashi Syndrome. Networks families together for support. Newsletter, annual conference. Supports research.
Write:
Hermansky-Pudlak Syndrome Network
1 South Rd.
c/o Donna Jean Appell
Oyster Bay, NY 11771-1905
Voice: 1-800-789-9477 or 519-922-4022
Fax: 516-624-0640
Website: http://www.hpsnetwork.org or http://www.hermansky-pudlak.org or http://www.chediak-higashi.org
E-mail: hpsnet@worldnet.att.net
Verified: 4/26/2007
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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	Hermansky-Pudlak Syndrome Network