National. 2 chapters. Founded 1984. Provides information and assistance for those affected by Gaucher disease. Provides education and outreach to increase public awareness. Operates the Gaucher Disease Family Support Network. Quarterly newsletter, phone support and medical board. Guidelines to help start similar groups.
Write:
National Gaucher Foundation
61 General Early Dr.
Harpers Ferry, WV 25425
Voice: 1-800-428-2437
Fax: 304-725-6429
Website: http://www.gaucherdisease.org
E-mail: ngf@gaucherdisease.org
Verified: 10/8/2008
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