Self Help Clearinghouse

Facioscapulohumeral Muscular Dystrophy

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FSH Society, Inc. (Facioscapulohumeral Disease)

National network. Founded 1991. Support, information, education, networking and advocacy for individuals with facioscapulohumeral disease (aka Landouzy-Dejerine muscular dystrophy). Purpose is to increase awareness, understanding and conduct research and education on the second most prevalent muscular dystrophy in adults. Funds research through grants to researchers. Acts as a clearinghouse for information on the FSHD disorder and on potential drugs and devices designed to alleviate the effects of the disease. Newsletter, support group meetings, conferences and literature.
Write:
FSH Society
3 Westwood Rd.
Lexington, MA 02420
Voice: 781-860-0501 (Carol Perez) or 781-275-7781 (Daniel Paul Perez)
Fax: 781-860-0599 or 781-863-0788
Website: http://www.fshsociety.org
E-mail: solvefshd@fshsociety.org
Verified: 5/1/2007

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

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Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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