Self Help Clearinghouse

Ellis Van Creveld Syndrome

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Ellis Van Creveld Support Group

International network. Founded 1997. Provides support and information for families affected by Ellis Van Creveld syndrome (aka chondroectodermal dysplasia), an extremely rare form of dwarfism. Networks families together for support. Literature, advocacy, phone support, information and referrals. Connects with medical community to find ways to save the lives of infants born with this genetic disorder.
Write:
Ellis Van Creveld Support Group
17 Bridlewood Trail
Honeoye Falls, NY 14472
Voice: 585-624-8277 or 585-737-1500
E-mail: PattiMO44@aol.com or evc@crydee.plus.com
Verified: 9/19/2007

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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