Self Help Clearinghouse

Chromosome Disorders

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Chromosome Deletion Outreach

National network. Founded 1992. Organization providing support and information to families affected by rare chromosome disorders. Membership is free.
Write:
Chromosome Deletion Outreach
P.O. Box 724
Boca Raton, FL 33429-0724
Voice: 561-395-4252
Fax: 561-395-4252
Website: http://www.chromodisorder.org
E-mail: info@chromodisorder.org
Verified: 4/25/2007

Disorders of Chromosome 16 Foundation

International network. Founded 1998. Provides support and information to families of children affected by any chromosome 16 disorder, including partial trisomy 16, and unbalanced translocations. Information and referrals, phone support and literature.
Write:
DOC16
23 Lawrencia Dr.
c/o Rosalyn Gregg
Lawrenceville, NJ 08648
Voice: 609-219-9449
Website: http://www.trisomy16.org
E-mail: gelaszus@hotmail.com
Verified: 10/9/2007

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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