Self Help Clearinghouse

Celiac Sprue

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American Celiac Society / Dietary Support Coalition

National. 78 affiliated chapters. Founded 1976. Mutual support and information for celiac-sprue patients, families and health care professionals. Buddy system, visitation, phone help system, newsletter and participation in educational efforts. Also supports dermatitis herpetiformis, Crohn's disease, lactose intolerance and other food allergies.
Write:
American Celiac Society
P.O. Box 23455
New Orleans, LA 70183
Voice: 504-737-3293 (Annette Bentley)
Website: http://www.americanceliacsociety.org
E-mail: americanceliacsociety@yahoo.com or amerceliacsoc@netscape.net (please dod not send attachments)
Verified: 10/24/2007

Celiac Sprue Association/United States of America, Inc.

National. 100 chapters and 60 resource units. Founded 1969. Provides educational materials on celiac sprue, dermatitis herpetiformis and basics for the gluten-free diet for patients, parents of children with celiac sprue and professionals. Children's camp in August in Rhode Island. CelKids network. Provides opportunities for support groups and networking with patients and professionals. Newsletter and annual conference. Group development guidelines.
Write:
Celiac Sprue Association/USA
P.O. Box 31700
Omaha, NE 68131-0700
Voice: 1-877-272-4272 or 402-558-0600
Fax: 402-643-4108
Website: http://www.csaceliacs.org
E-mail: celiacs@csaceliacs.org
Verified: 4/26/2007

Celiac Disease Foundation

National. Founded 1990. Creates awareness and provides services and support for patients, their families, medical and healthcare professionals seeking information about celiac disease/dermatitis herpetiformis. Free information packets. Annual membership $35.00. Handbook 'Guidelines For a Gluten-Free Lifestyle' is included with annual membership or sold separately for $10. Members receive a quarterly newsletter and update notices of upcoming events. Brochure and quick start diet guide available in English and Spanish.
Write:
Celiac Disease Foundation
13251 Ventura Blvd., Suite 1
Studio City, CA 91604
Voice: 818-990-2354
Fax: 818-990-2379
Website: http://www.celiac.org
E-mail: cdf@celiac.org
Verified: 9/20/2007

Gluten Intolerance Group of North America

National network. 30+ affiliated groups. Founded 1974. Mission is to increase awareness by providing accurate and up-to-date information, education and support to persons with gluten intolerance, celiac disease/dermatitis herpetiformis, their families, health care professionals and the public. Offers News magazine ($35), information and referral, conferences, guidance to those starting groups, group development guidelines and cookbooks.
Write:
Gluten Intolerance Group
31214 124th Ave., SE
Auburn, WA 98092
Voice: 253-833-6655
Fax: 253-833-6675
Website: http://www.gluten.net
E-mail: info@gluten.net
Verified: 4/25/2007


The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

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Topic Contents
 American Celiac Society / Dietary Support Coalition
 Celiac Sprue Association/United States of America, Inc.
 Celiac Disease Foundation
 Gluten Intolerance Group of North America