International network. Founded 1991. Mutual support for persons affected by bladder exstrophy including: parents of children with bladder exstrophy, adults, healthcare professionals and others interested in exstrophy. Newsletter, literature, information and referrals, informal pen pal program, conferences, advocacy and directory of members. Informal kids e-mail exchange. Dues $25/yr.
Write:
Association for the Bladder Exstrophy Community
3075 First St.
La Salle, MI 48145
Voice: 1-866-300-2222
Website: http://www.bladderexstrophy.com
E-mail: admin@bladderexstrophy.com
Verified: 9/30/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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