National Organization for Rare Disorders, Inc.

Carcinoid Syndrome

Important
It is possible that the main title of the report Carcinoid Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

• carcinoid cancer
• carcinoid disease
• functioning carcinoid
• carcinoid apudoma
• functioning argentaffinoma
• neuroendocrine tumor carcinoid type
• malignant carcinoid syndrome

Disorder Subdivisions

• None

General Discussion

Carcinoid syndrome is a disease consisting of a combination of symptoms, physical manifestations, and abnormal laboratory chemical findings caused by a carcinoid tumor. A carcinoid tumor is a tumor that secretes large amounts of the hormone serotonin. These tumors usually arise in the gastrointestinal tract and from there may migrate (metastasize) to the liver. Carcinoid tumors also sometimes develop in the lung.

Only about 10% of the people with carcinoid tumors will develop the carcinoid syndrome. Major symptoms of this syndrome include hot, red facial flushing, diarrhea and wheezing. Carcinoid syndrome occurs when the tumors produce excessive amounts of serotonin or other substances.

Resources

American Cancer Society, Inc.
1599 Clifton Road NE
Atlanta, GA 30329
USA
Tel: (404)320-3333
Tel: (800)227-2345
Internet: http://www.cancer.org

11Q Research and Resource Group
83 Lantern Hill Road
Mystic, CT 06355
USA
Tel: (860)599-4015
Fax: (860)441-6159
Email: david_m_george@groton.pfizer.com
Internet: http://www.11qusa.org

Carcinoid Cancer Foundation, Inc.
333 Mamaroneck Avenue #492
White Plains, NY 10605
USA
Tel: (914)683-1001
Fax: (914)683-0183
Tel: (888)722-3132
Email: carcinoid@optonline.net
Internet: http://www.carcinoid.org

Caring for Carcinoid Foundation
One Kendall Square
PMB 180
Cambridge, MA 02139
Tel: (857)222-5492
Email: info@caringforcarcinoid.org
Internet: http://www.caringforcarcinoid.org

Friends of Cancer Research
2231 Crystal Drive
Suite 200
Arlington, VA 22202
Tel: (703)302-1503
Fax: (703)302-1568
Email: info@focr.org
Internet: http://www.focr.org

Cancer.Net
American Society of Clinical Oncology
2318 Mill Road
Suite 800
Alexandria, VA 22314
Tel: (571)483-1780
Fax: (571)366-9537
Tel: (888)651-3038
Email: contactus@cancer.net
Internet: http://www.cancer.net/patient

Wellness Community
919 18th Street N.W.
Suite 54
Washington, DC 20006
Tel: (202)659-9709
Fax: (202)659-9301
Tel: (888)793-9355
Email: help@thewellnesscommunity.org
Internet: http://www.thewellnesscommunity.org

Lance Armstrong Foundation
PO Box 161550
Austin, TX 78716-1150
Tel: (512)236-8820
Fax: (512)236-8482
Tel: (866)235-7205
Internet: http://www.livestrong.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  4/25/2008
Copyright  1989, 1992, 1996, 1998, 2000, 2002, 2004, 2005 National Organization for Rare Disorders, Inc.

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