National Organization for Rare Disorders, Inc.

Cystic Hygroma

Important
It is possible that the main title of the report Cystic Hygroma is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

• Cystic Lymphangioma
• Familial Nuchal Bleb
• FCH
• Fetal Cystic Hygroma
• Hygroma Colli

Disorder Subdivisions

• None

General Discussion

Cystic hygromas are non-malignant malformations of the lymphatic system characterized by single or multiple fluid-filled lesions that occur at sites where the lymphatic system connects to the venous system, most commonly the back of the neck. Typically, this disorder becomes apparent in infancy or early childhood. Ninety percent of cases are symptomatic by the age of two years.
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Resources

National Lymphatic and Venous Diseases Foundation, Inc.
70 Heritage Ave
Unit 9
Portsmouth, NH 03801
USA
Tel: 6033348600
Fax: 6033346464
Tel: 8003012103

American Cancer Society, Inc.
1599 Clifton Road NE
Atlanta, GA 30329
USA
Tel: 4043203333
Tel: 8002272345
Internet: http://www.cancer.org

Cystic Hygroma Support Group
55 Jewel Walk
Bewbush
Crawley, Intl RH11 8BH
United Kingdom
Tel: 01293 571545

National Organization of Vascular Anomalies
PO Box 8711-104 Six Forks Road
PMB 126
Raleigh, NC 27615
Tel: (919)844-0370
Email: admin@mail.novanews.org
Internet: http://www.novanews.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  4/18/2003
Copyright  1989, 1994, 2003 National Organization for Rare Disorders, Inc.

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