Helpful resources and links

Financial Assistance Program

Link

Down syndrome (also called trisomy 21)

Lettercase

http://www.lettercase.org/
Download an electronic book on Down Syndrome

National Down Syndrome Congress

http://www.ndsccenter.org/

National Down Syndrome Society

http://www.ndss.org/

National Association for Down Syndrome

http://www.nads.org/

Down Syndrome Pregnancy, Inc.

http://downsyndromepregnancy.org/

National Society of Genetic Counselors

Fact Sheet for New and Expectant Parents

Learning Center My46

https://www.my46.org/learning-center

What is trisomy 18—often called Edwards syndrome

Chromosome 18 Registry and Research Society

www.chromosome18.org

Trisomy 18 Foundation

www.trisomy18.org

Genetics Home Reference

http://ghr.nlm.nih.gov/condition/trisomy-18

What is trisomy 13 – often called Patau syndrome

National Organization for Rare Disorders

http://rarediseases.org/rare-diseases/trisomy-13-syndrome

Genetics Home Reference

http://ghr.nlm.nih.gov/condition/trisomy-13

Turner syndrome- often called Monosomy X

Genetics Home Reference

http://ghr.nlm.nih.gov/condition/turner-syndrome

http://www.childrenshospital.org/conditions-and-treatments/conditions/turner-syndrome

The Turner Syndrome Society of the United States

turnersyndrome.org

XXY – often called Klinefelter syndrome

Genetics Home Reference

http://ghr.nlm.nih.gov/condition/klinefelter-syndrome

Medline Plus

https://www.nlm.nih.gov/medlineplus/ency/article/000382.htm

National Human Genome Research Institute

https://www.genome.gov/19519068

National Organization for Rare Disorders

https://rarediseases.org/rare-diseases/klinefelter-syndrome/

Triple X and XYY syndromes

http://ghr.nlm.nih.gov/condition/triple-x-syndrome

http://ghr.nlm.nih.gov/condition/47xyy-syndrome

National Organization for Rare Disorders

http://rarediseases.org/rare-diseases/trisomy-x/
https://rarediseases.org/rare-diseases/xyy-syndrome/

AXYS

genetic.org

The Focus Foundation

thefocusfoundation.org